Caring For Children With Cerebral Palsy And Developmental Delays

Children with cerebral palsy and other developmental disabilities often require round-the-clock care, particularly if they suffer co-occurring disorders. Parents of children with CP often cannot afford to pay full or even part-time caregivers, and are thus forced to shoulder the burden on their own. Assistive technology and other resources can ease this burden, however, particularly if CP is diagnosed early and parents know what to expect.

If your child is diagnosed with a developmental disability — or if you suspect a disability and are currently seeking diagnosis — your role as caregiver is paramount. You could spell the difference between a happy childhood and unnecessary suffering. Keep reading to learn more about caring for your developmentally disabled child.

Caregiver Goals For Children With Cerebral Palsy

Caregivers (including both parents and occupational therapists) should strive to provide the best possible quality of life for children diagnosed with CP. This means minimizing CP-related pain, promoting greater mobility, and encouraging children to develop what functional and communication skills they can. Parents must also provide emotional support — particularly for those with higher functioning, who may be well aware of the differences between them and their non-CP peers.

Outfitting the Home For Developmentally Disabled Children

Children with CP and other disabilities should be comfortable in their own home. This may necessitate extensive adaptations to ensure the greatest possible mobility. Children with CP often struggle in home-based bathrooms, so it is important to outfit yours with either a semi-reclined bath seat or a hydraulic lift, particularly if your child suffers severe mobility problems. A sitting or kneeling shower with grab bars and a nonskid strip may be sufficient for children with mild CP. Bathrooms may also require raised toilet seats and grab bars near the toilet. Elsewhere in the home, ramps, elevators, widened doors, or transfer benches may be required to help children get around.

Encouraging Functional Development

In an effort to aid disabled children, some parents unintentionally cause additional harm, as their actions may not encourage their kids to develop essential skills. Experts recommend that parents place objects their children desire just out of reach so as to stimulate greater movement. Parents should also assist children with exercises provided by their physical therapist in the interest of easing joint and muscle stiffness.

Acceptance and Emotional Support

Co-occurring mental disorders often accompany cerebral palsy. A cross-sectional study published in the Journal of Child Psychology and Psychiatry found that many children with CP suffered psychological impairments sufficient to require referral to mental health providers. Parents can play a huge role in easing the mental health implications of CP, simply by accepting their children as they are and providing consistent emotional support. Additionally, experts at CerebralPalsy.org encourage parents to cultivate their children’s interests, as this can give them a much-needed sense of personal pride and confidence.